Welcome to Rare Disease United Foundation
Our mission is to build a strong rare disease community throughout the United States so that we may help to provide support and information to our families, raise awareness and advocate for our families.
“Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round peg in the square holes…the ones who see things differently — they’re not fond of rules. You can quote them, disagree with them, but the only thing you can’t do is ignore them because they change things..they push the human race forward, and while some may see them as crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.”
~ Steve Jobs
Million Americans have a Rare disease
Million people worldwide have a Rare disease
Rare diseases exist
Average number of years to diagnosis