1 in 10 Americans has a Rare Disease

There are 7,000 rare diseases affecting 30 million Americans,
the majority of them children

Only 5% of the 7,000 rare diseases have a treatment.
There are no cures.

We are 30 million strong!

It's time to hear about rare!

Rare Diseases. Be United!

Welcome to Rare Disease United Foundation

Our mission is to build a strong rare disease community throughout the United States so that we may help to provide support and information to our families, raise awareness and advocate for our families.

Hear Our Voice


Hear OUR (Orphan.Undiagnosed.Rare) Voice was created for the 250 million people living with a rare disease to come together and be counted. Please join the movement and LIKE our page!

“Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round peg in the square holes…the ones who see things differently — they’re not fond of rules. You can quote them, disagree with them, but the only thing you can’t do is ignore them because they change things..they push the human race forward, and while some may see them as crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.”

~ Steve Jobs

world orphan drug congress

© Copyright 2014 - Rare Disease United Foundation