Welcome to Rare Disease United Foundation
Our mission is to build a strong rare disease community throughout the United States so that we may help to provide support and information to our families, raise awareness and advocate for our families.
FOR IMMEDIATE RELEASE April 28, 2014 Providence, RI – The Rare Disease United Foundation, a leading awareness and advocacy organization for rare diseases has appointed Giovanni Feroce, former CEO of Alex & Ani, as its new Chairman of the Board of Directors. The Rare Disease United Foundation, in under three years, has developed a […]
Hear Our Voice
Hear OUR (Orphan.Undiagnosed.Rare) Voice was created for the 250 million people living with a rare disease to come together and be counted. Please join the movement and LIKE our page!
“Here’s to the crazy ones, the misfits, the rebels, the troublemakers, the round peg in the square holes…the ones who see things differently — they’re not fond of rules. You can quote them, disagree with them, but the only thing you can’t do is ignore them because they change things..they push the human race forward, and while some may see them as crazy ones, we see genius, because the ones who are crazy enough to think that they can change the world, are the ones who do.”
~ Steve Jobs